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On September 30, 2020, Haspha Nassolo gave birth to her fourth child, a girl she named Shanaz Nsubuga. For Nassolo, this was a joyful blessing, a new life to nurture after two daughters and two sons. But the happiness did not last long.
“My daughter started having recurrent eye problems. At first, I thought it was a minor infection, but with time, things got worse,” Nassolo recalls.
Little Nsubuga suffered from a congenital cataract, a condition that clouded her eyesight and required multiple surgeries before her first birthday. Her early months were marked by hospital visits, sleepless nights, and endless prayers.
“We spent most of our time looking for the right doctors. Everyone kept referring us to Mengo Hospital, and that’s where the diagnosis was made. She underwent more than eight surgeries at a cost of more than sh20m, but in the end, she lost her sight. Even after losing her sight, she is still on medication. We spent so much money that we had to appeal to well-wishers and philanthropists for support,” she says.
When Nsubuga turned four, her parents faced a new challenge, of education. Finding a school suitable for a visually impaired child was not easy. After searching through several primary schools in Kampala, they discovered that the nearest appropriate one was in Entebbe. However, the family lives in Matugga, Wakiso district, nearly 40km away.
“I couldn’t take her to boarding school because she is still young and needed her mother’s care. So, I decided to take her to school every day,” Nassolo explains.
Every morning, she would wake up at 4:00am, to prepare Nsubuga, pack her breakfast, and by 5:00am, they would be out of the house. They take a taxi from Matugga to Bwaise, another one to Busega, and then one more to Entebbe Municipality via the Entebbe Expressway. From there, a bodaboda takes them to school.
“I reach Entebbe around 7:30am, after dropping her off, I rush to my workplace in Lubowa. In the evening, I leave at 5:00pm, but because of traffic, I reach the school close to 7:00pm”, she says, her voice heavy with fatigue.
The return journey is even harder. By the time they get to Matugga, it’s often past 9:00pm. “Sometimes I find my daughter sitting at the school gate alone, waiting for me. It breaks my heart, but I have no choice,” Nassolo says.
As the world celebrated World Sight Day on October 8, eye healthcare professionals called for more investment in the sector to enable Ugandans, especially children, to reach their full potential.
In an interview with the New Vision, Sylvester Kasozi, the country director of Light for the World, an organisation that supports persons with disabilities, appealed to the Government to treat eye health as an essential part of the country’s healthcare and education systems rather than an afterthought.

ylvester Kasozi, the country director of Light for the World, an organisation that supports persons with disabilities. (Courtesy)

Sumrana Yasmin, Technical Director for Inclusive Health at Sight savers. (Courtesy)